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376405

Assistant Professor of Cardiology and angiology, Cardiology Department, Faculty of Medicine, Alexandria University, Egypt

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Last updated: 05 Jan 2025

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Abstract

Background: Sickle-cell disease is a broad term that refers to a variety of diseases. The majority of those affected have chronic anemia, with a hemoglobin level of roughly 8 g/dl. The major issues emerge from red blood cells' tendency to become sickle-shaped and obstruct capillaries when oxygen tension is low, using patterns such as family-centered empowerment can be effectively promoting individual self-care behaviors. Family empowerment improves knowledge and attitudes, leading to improved performance and quality of care, improved self-care, accelerated patient recovery, and reduced complications of disease. Objective: This study aimed to assess the Family empowerment in the care of patients with sickle cell disease in Siwa Oasis. Settings: The study was conducted at the outpatient clinic provides a lot of services for patient with sickle cell disease such as (lab investigation , blood trance fusion and control pain crisis ) at Siwa General Hospital which is the only hospital at siwa oasis which serve about 30000 citizens Subjects: the data was collected from (112) caregivers in caring with patients suffering from Sickle cell disease treated in the previously mentioned setting. Tools: two tools were used,
family structured interview including; Socio-demographic Characteristics questionnaire, and Health profile, and Family empowerment scale (FES) Results: More than half of the studied families had "high" level of family empowerment . More than quarter of the studied families had "moderate" level of family empowerment .and the minority of them had "low" level of family empowerment .There were statistical significant differences between level of empowerment and their age, gender, level of education, and place of residence. Conclusion: The present study concluded that the level of empowerment affected by the level of education, availability of resources, severity of the disease, and the onset of the disease also the level to which extent this families have been empowered . Recommendations: Creating an integrated system to support people with sickle cell anemia by providing specialists, treatments and necessary examinations .

DOI

10.21608/asalexu.2024.376405

Keywords

Family empowerment, Sickle cell disease, Siwa Oasis

Authors

First Name

Osama

Last Name

Ibrahim

MiddleName

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Affiliation

Faculty of Nursing, Alexandria University

Email

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City

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Orcid

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First Name

Houaida

Last Name

Helal

MiddleName

-

Affiliation

Community Health Nursing, Faculty of Nursing, Alexandria University.

Email

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City

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Orcid

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First Name

Wael

Last Name

Lotfy

MiddleName

-

Affiliation

Medical parasitology, Faculty of Nursing, Matrouh University.

Email

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City

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Orcid

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First Name

Eman

Last Name

Aboelyazied

MiddleName

-

Affiliation

Community Health Nursing, Faculty of Nursing, Alexandria University.

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-

City

-

Orcid

-

Volume

26

Article Issue

3

Related Issue

50016

Issue Date

2024-09-01

Receive Date

2024-08-27

Publish Date

2024-09-01

Page Start

281

Page End

293

Print ISSN

1687-3858

Link

https://asalexu.journals.ekb.eg/article_376405.html

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https://asalexu.journals.ekb.eg/service?article_code=376405

Order

376,405

Type

Research articles

Type Code

2,129

Publication Type

Journal

Publication Title

Alexandria Scientific Nursing Journal

Publication Link

https://asalexu.journals.ekb.eg/

MainTitle

Assistant Professor of Cardiology and angiology, Cardiology Department, Faculty of Medicine, Alexandria University, Egypt

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Article

Created At

28 Dec 2024