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294233

Effect of Educational Program on Mothers’ Practices towards Caring for their Children Having Phenylketonuria

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Last updated: 03 Jan 2025

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Abstract

 Background: Phenylketonuria (PKU) is an autosomal recessive inborn error of phenylalanine metabolism resulting from deficiency of phenylalanine hydroxylase (PAH). Aim: The objective of this study was to evaluate effect of educational program on mothers' knowledge, practices and behavior towards caring for their children having Phenylketonuria. Methods: A pre/post quasi experimental study was conducted on 128 mothers. Settings: The study conducted at the Metabolic Clinic, Department of Medical Genetics, Faculty of Medicine, Ain Shams University. Tool: Pre designed interviewing questionnaire consists of 4 parts: Part 1: Personal characteristics of mothers. Part 2: Mothers' knowledge about PKU. Part 3: Mothers' Reported Practice about PKU. Part 4: Mothers Reported Behavior. Results: A difference was highly positive association between knowledge, reported practice, & reported behavior (.674 & .398) respectively. In addition, the highest positively association with total self-reported practice and reported behavior with r (.608). Conclusion: Current study concluded that an educational program affecting positively on mother's knowledge and practices and behavior. Recommendation: Provide continuous health education to mothers and their children with PKU to improve their adherence to therapeutic regimen 

DOI

10.21608/ejhc.2023.294233

Keywords

Phenylketonuria, Mothers, Practice, Educational Program

Authors

First Name

Amira

Last Name

Khalil Ibrahim

MiddleName

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Affiliation

Department of Pediatric Nursing, Faculty of Nursing, Ain Shams University.

Email

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City

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Orcid

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First Name

Eman

Last Name

Amin Mohamed

MiddleName

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Affiliation

Department of Pediatric Nursing, Faculty of Nursing, Ain Shams University.

Email

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City

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Orcid

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First Name

Safy

Last Name

Salah Eldin AlRafay

MiddleName

-

Affiliation

Department of Pediatric Nursing, Faculty of Nursing, Ain Shams University.

Email

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City

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Orcid

-

First Name

Ola

Last Name

Ali Khalifa

MiddleName

-

Affiliation

Medical Genetics Department, Faculty of Medicine, Ain Shams University

Email

-

City

-

Orcid

-

Volume

14

Article Issue

2

Related Issue

40375

Issue Date

2023-06-01

Receive Date

2023-04-06

Publish Date

2023-06-01

Page Start

172

Page End

182

Print ISSN

1687-9546

Online ISSN

3009-6766

Article File

EJHC_Volume 14_Issue 2_Pages 172-182.pdf

PDF . 432.5kB

Link

https://ejhc.journals.ekb.eg/article_294233.html

Detail API

https://ejhc.journals.ekb.eg/service?article_code=294233

Order

14

Type

Original Article

Type Code

631

Publication Type

Journal

Publication Title

Egyptian Journal of Health Care

Publication Link

https://ejhc.journals.ekb.eg/

MainTitle

Effect of Educational Program on Mothers’ Practices towards Caring for their Children Having Phenylketonuria

Details

Type

Article

Created At

24 Dec 2024