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287626

Asthma-Related Knowledge, Management and Burden among Mothers of Intellectually Disabled Children with Bronchial Asthma

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Last updated: 03 Jan 2025

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Abstract

Background: Children with intellectual disability are at an increased risk of bronchial asthma. Unfortunately, no 
specific guidelines exist for dealing with and managing Intellectually Disabled (ID) children with Bronchial 
Asthma (BA). Recent innovations in medical care have shifted asthma treatment from hospitalization to 
ambulatory care. Consequently, mothers' care has become the most important part of the treatment, and almost 
all treatment responsibilities have fallen on them. Aim: to determine asthma-related knowledge, management,
and burden among mothers of intellectually disabled children with bronchial asthma. Design: An explanatory 
sequential mixed design was used. Settings: All governmental intellectual disability schools distributed in 6 
educational directorates affiliated with El-Beheira Governorate (6 mixed gender schools). Subjects: Purposive 
sample of mothers with children with intellectual disability and bronchial asthma. Tools: Four data collection 
tools were used to collect qualitative and quantitative data for the study; For quantitative data, three structured 
interview schedule tools were used as follows: Tool I: Personal Characteristics and Health Profile of Children, 
Tool II and III: Asthma-Related Knowledge and Management of Mothers Regarding their Intellectually Disabled 
Children with Bronchial Asthma. While for qualitative data, Tool IV Focus Group Discussion Guide (FGD) for 
the mothers of Intellectually Disabled Children with Bronchial Asthma was used. Results: It was found that the 
majority (78.6%) of mothers with a good BA knowledge level had a good BA management score. On the other 
hand, the majority (97.7%) of mothers with poor BA knowledge had a poor BA management score (X2: 51.3, p 
<0.001). Regarding the qualitative data, it was clustered into four categorical schemes: 1: Caring role, 2: 
Constant concern, 3: Caring impacts on life and 4: Unmet needs. Conclusion: it can be concluded that more 
than half of the mothers of intellectually disabled children with bronchial asthma had a poor knowledge score. 
Moreover, more than two-thirds of them had a poor management score. Caring for intellectually disabled 
children with bronchial asthma negatively affects mothers' health, relationships, social status, financial stability, 
emotional and psychological well-being. The mothers struggle with unmet social, psychological, and financial 
needs. Recommendations: The current study recommended raising awareness, designing an asthma 
management training program and providing psychological and social support for mothers of intellectually 
disabled children with bronchial asthma to improve the care provided to their children

DOI

10.21608/ejhc.2022.287626

Keywords

bronchial asthma, Intellectual Disability Children, Intellectual Education Schools, Mothers Burden, Knowledge, Management & Nursing

Authors

First Name

Elham

Last Name

Hassan Tawfik

MiddleName

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Affiliation

Assistant Professor, Community Health Nursing Department, Faculty of Nursing, Damanhur University, Egypt. and Associate Professor, Community Health Nursing Department, Faculty of Nursing, The British University in Egypt.

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Orcid

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First Name

Marwa

Last Name

Mohamed Ouda

MiddleName

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Affiliation

Assistant Professor, Pediatric Nursing Department, Faculty of Nursing, Damanhur University, Egypt. and Assistant Professor, Maternal and Child Health Nursing Department, College of Nursing, Jouf University, Saudi Arabia

Email

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City

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Orcid

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First Name

Amel

Last Name

Attia Abd Elghaffar Moustafa

MiddleName

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Affiliation

Lecturer, Community Health Nursing Department, Faculty of Nursing, Damanhour University, Egypt.

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Volume

13

Article Issue

3

Related Issue

35657

Issue Date

2022-09-01

Receive Date

2023-02-27

Publish Date

2022-09-01

Page Start

2,065

Page End

2,084

Print ISSN

1687-9546

Online ISSN

3009-6766

Link

https://ejhc.journals.ekb.eg/article_287626.html

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https://ejhc.journals.ekb.eg/service?article_code=287626

Order

287,626

Type

Original Article

Type Code

631

Publication Type

Journal

Publication Title

Egyptian Journal of Health Care

Publication Link

https://ejhc.journals.ekb.eg/

MainTitle

Asthma-Related Knowledge, Management and Burden among Mothers of Intellectually Disabled Children with Bronchial Asthma

Details

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Article

Created At

24 Dec 2024