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99674

Assessment of Knowledge, Strains and Coping of the Family Care Givers Having Autistic Children

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Last updated: 22 Jan 2023

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Abstract

Background: Autism is a lifelong disability and, a broad spectrum disorder of unknown cause appears during the first three years of life. Aim: The present study aimed to assess the knowledge, strains and coping of the family caregivers having autistic children (descriptive study). Setting: The study was conducted in Children & Adolescent Psychiatric Outpatient Clinic in Suez Canal University Hospital, El-Terbia El-Fekria, El-Salam El-Engelia, Gamal El-Din El-Afghani and Ard El-Mashtl Primary Schools, Wyana Institution for Integration and Rehabilitation, El-Aml Center for Children with Special Needs, El-Tathkief El-Fekri Institution and the Psychiatric Measures Clinic at Ismalia city. Sample: Included 36 caregivers and 36 autistic children. Data were obtained through an interview with the studied caregivers using three tools: structured interview questionnaire, caregiver strain questionnaire-short form and brief cope scale. Results: Revealed that 44.4% of the studied caregivers had unsatisfactory total knowledge regarding autism, 77.8% of the studied caregivers' total strains mean scores were high and the 97.2% of the studied caregivers had high total coping mean scores.Conclusion: The studied caregivers had unsatisfactory total knowledge mean score (regarding autism, strains and coping), had high total strains mean scores and had high total coping mean scores. Recommendation: Emphasize the importance of carrying out educational programs to improve knowledge of autistic children's care givers regarding their autistic children's needs and care. Also regular assessment and monitoring of the studied family care givers' strains and coping is recommended.  

DOI

10.21608/pssjn.2020.99674

Keywords

autism, Knowledge, Strain, Coping, caregivers, children, pediatric nurse

Authors

First Name

Safaa

Last Name

Abu El-Soud

MiddleName

Gomaa

Affiliation

pediatric Nursing- Suez Canal University

Email

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City

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Orcid

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First Name

Wafaa

Last Name

Ouda

MiddleName

El-Sayed

Affiliation

Pediatric Nursing- Ain Shams University

Email

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City

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Orcid

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First Name

Somaya

Last Name

Abou Abdou

MiddleName

El Sayed

Affiliation

Psychiatric and Mental Health Nursing - Suez Canal University

Email

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City

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Orcid

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First Name

Manal

Last Name

Mohamed

MiddleName

Farouk

Affiliation

Pediatric nursing- Suez Canal University

Email

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City

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Orcid

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Volume

7

Article Issue

2

Related Issue

12922

Issue Date

2020-06-01

Receive Date

2020-06-30

Publish Date

2020-06-30

Page Start

202

Page End

219

Print ISSN

2356-8658

Online ISSN

2682-3241

Link

https://pssjn.journals.ekb.eg/article_99674.html

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https://pssjn.journals.ekb.eg/service?article_code=99674

Order

9

Type

Original Article

Type Code

866

Publication Type

Journal

Publication Title

Port Said Scientific Journal of Nursing

Publication Link

https://pssjn.journals.ekb.eg/

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Article

Created At

22 Jan 2023