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190066

Assessment of Psychological Well-Being and Coping Strategies among Family Caregivers of Children with Down syndrome

Article

Last updated: 03 Jan 2025

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Abstract

Background: Family caregivers of children with Down Syndrome are frequently unstable and
forego their psychological well-being, suffer additional economic difficulties, ill health and cope
ineffectively than families without disabilities. Aim: This study aimed to assess psychological well-
being and coping strategies among family caregivers of children with Down Syndrome. Design: A
descriptive research design was utilized in this study. Setting: This study was carried out in the Genes
Clinics of Down Syndrome in the specialized clinics of the university pediatric hospital affiliated to
Ain Shams University Hospitals. Subjects: A sample of 60 family caregivers of children with Down
Syndrome. The study tools were: 1) Interviewing Questionnaire, 2) Brief-COPE inventory (Carver,
1997) and 3) Ryff's Psychological well-being scale (1989). The results: The study showed that family
caregivers of children with Down Syndrome depended mainly on emotion-focused coping strategies in
managing burden of child caregiving and the most frequent used emotion focused coping strategies
were religion, acceptance and venting while the most frequent used problem-focused coping strategy
was use of instrumental support. Concerning to psychological well-being, more than half of family
caregivers of children with Down Syndrome had psychological well-being less than usual.
Conclusions: There was a negative statistically significant correlation between psychological well-
being and all types of emotion-focused coping strategies except for humor, acceptance and religion.
Meanwhile, there was a positive statistically significant correlation between level of psychological
well-being and all subscales of problem-focused coping strategies. Recommendations: Future research
to assess challenges encountered by siblings of Down Syndrome children and to apply supportive
intervention that promotes positive relationships and attitudes as well as Establishment of counseling
clinics for parents and siblings to improve their psychological well-being and coping strategies.

DOI

10.21608/ejhc.2021.190066

Keywords

Down syndrome, psychological well-being, Coping strategies, family caregivers

Authors

First Name

Amgad

Last Name

Said Mohammed

MiddleName

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Affiliation

Ass. Lecturer of Psychiatric/Mental Health Nursing - Faculty of Nursing Ain Shams University.

Email

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City

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Orcid

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First Name

Sahar

Last Name

Mahmoud Mohamed

MiddleName

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Affiliation

Professor of Psychiatric/Mental Health Nursing- Faculty of Nursing Ain Shams University.

Email

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City

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Orcid

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First Name

Rania

Last Name

Abdel-Hamid Zaki

MiddleName

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Affiliation

Assistant Professor of Psychiatric/Mental Health Nursing - Faculty of Nursing Ain Shams University.

Email

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City

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Orcid

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Volume

12

Article Issue

3

Related Issue

26508

Issue Date

2021-09-01

Receive Date

2021-08-18

Publish Date

2021-09-01

Page Start

274

Page End

288

Print ISSN

1687-9546

Link

https://ejhc.journals.ekb.eg/article_190066.html

Detail API

https://ejhc.journals.ekb.eg/service?article_code=190066

Order

20

Type

Original Article

Type Code

631

Publication Type

Journal

Publication Title

Egyptian Journal of Health Care

Publication Link

https://ejhc.journals.ekb.eg/

MainTitle

Assessment of Psychological Well-Being and Coping Strategies among Family Caregivers of Children with Down syndrome

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Article

Created At

22 Jan 2023