125752

Relationship between Psychological Well-Being and Coping Strategies among Family Caregivers of Children with Down syndrome

Article

Last updated: 03 Jan 2025

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Abstract

Background: Rearing a child with Down Syndrome requires use of effective coping
strategies that may have a buffering effect on psychological well-being of family caregivers.
Aim: This study aimed to assess the relationship between psychological well-being and
coping strategies among family caregivers of children with Down syndrome. Design: A
descriptive research design was utilized in this study. Setting: This study was carried out in
the Genes Clinics of DS in the specialized clinics of the university pediatric hospital affiliated
to Ain Shams University Hospitals. Subjects: A sample of 120 family caregivers of children
with Down syndrome. The study tools were: 1) Interviewing Questionnaire, 2) Ryff's
Psychological well-being scale (1989) and 3) Brief-COPE inventory (Carver, 1997). The
results: The study showed that family caregivers of children with DS combined between
emotion-focused and problem focused coping strategies in managing burden of child
caregiving and the most frequent used emotion focused coping strategies were acceptance and
religion while the most frequent used problem-focused coping strategy was use of
instrumental support. Concerning to psychological well-being, near two thirds of family
caregivers of children with DS had psychological well-being less than usual. Conclusions:
There was a negative significant correlation between level of psychological well-being and
emotion-focused coping strategies except for use of emotional support, acceptance, self
distraction, venting, humor and religion. Meanwhile, there was a positive significant
correlation between level of psychological well-being and problem-focused coping strategies
except for positive reframing. Recommendations: Future research to assess factors that may
influence role of caregiving and different challenges faced by family caregivers in rearing
different aged children with DS.

DOI

10.21608/ejhc.2020.125752

Keywords

Psychological wellbeing, Coping strategies, Down syndrome

Authors

First Name

Amgad Said

Last Name

Mohammed

MiddleName

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Affiliation

Psychiatric/Mental Health Nursing Faculty of Nursing Ain Shams University.

Email

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City

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Orcid

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First Name

Sahar Mahmoud

Last Name

Eliwa

MiddleName

-

Affiliation

Psychiatric/Mental Health Nursing Faculty of Nursing Ain Shams University.

Email

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City

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Orcid

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First Name

Rania Abdel-Hamid

Last Name

Zaki

MiddleName

-

Affiliation

Psychiatric/Mental Health Nursing Faculty of Nursing Ain Shams University.

Email

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City

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Orcid

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Volume

11

Article Issue

4

Related Issue

18689

Issue Date

2020-12-01

Receive Date

2020-11-26

Publish Date

2020-12-01

Page Start

155

Page End

172

Print ISSN

1687-9546

Online ISSN

3009-6766

Link

https://ejhc.journals.ekb.eg/article_125752.html

Detail API

https://ejhc.journals.ekb.eg/service?article_code=125752

Order

10

Type

Original Article

Type Code

631

Publication Type

Journal

Publication Title

Egyptian Journal of Health Care

Publication Link

https://ejhc.journals.ekb.eg/

MainTitle

Relationship between Psychological Well-Being and Coping Strategies among Family Caregivers of Children with Down syndrome

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Article

Created At

22 Jan 2023