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203212

Breast Cancer Patients’ Experience about Involvement in Health Care: A Qualitative Study

Article

Last updated: 03 Jan 2025

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Tags

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Abstract

Background: Patient involvement in health care is a basic patient's right. Effective communication between the health care professional and the patient is associated with improved psychological functioning of the patient, adherence to treatment, and higher quality of life. Objective(s): This study aims to explore qualitatively breast cancer patients' experience and satisfaction with their involvement in cancer care. Methods: This study was carried out among 30 women in different breast cancer care stages through in depth-interviews. The patients were purposively selected from surgery and oncology outpatient clinics and surgery inpatient wards in Medical Research Institute Hospital- Alexandria University, and in Ayadi El-Mostakbal Cancer Care Center - Ayadi El-Mostakbal Charity Foundation, Alexandria, Egypt. Results: Some patients mentioned that they did not know their diagnosis until late, others complained of the harsh non-empathetic way of breaking the news of their disease. Patients, generally, reported a little understanding of their treatment plan, they just followed physician's instructions without receiving enough explanation. Patients on chemotherapy and radiotherapy expressed their unsatisfied need for information. Patients' source of information was mainly other patients who suffered from the same disease. Patients, in general, were not familiar with the concept of giving feedback, it was perceived by the majority of them as equivalent to complaining. Some patients believed that complaining could put them in trouble such as receiving harsh blame or even delaying their medication. Conclusion: Patients' narratives revealed poor involvement in health care and showed dissatisfaction of the majority of patients with their level of involvement.

DOI

10.21608/jhiph.2021.203212

Keywords

Patient involvement, breast cancer, Egypt, Qualitative research, decision-making

Authors

First Name

Eman

Last Name

El-Sayed

MiddleName

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Affiliation

Health Governance Unit, Medical Research Institute, Alexandria University, Egypt

Email

eman_elsayed4@yahoo.com

City

-

Orcid

-

First Name

Ensaf

Last Name

Abdelgawad

MiddleName

-

Affiliation

Department of Health Administrations and Behavioral Sciences, High Institute of Public Health, Alexandria University, Egypt

Email

-

City

-

Orcid

-

First Name

Nabil

Last Name

Dowidar

MiddleName

L.

Affiliation

Health Governance Unit, Medical Research Institute, Alexandria University, Egypt

Email

nabil_dowidar@yahoo.com

City

-

Orcid

-

First Name

Azza

Last Name

Mehanna

MiddleName

A.

Affiliation

Department of Health Administrations and Behavioral Sciences, High Institute of Public Health, Alexandria University, Egypt

Email

hiph.amehanna@alexu.edu.eg

City

-

Orcid

0000-0002-4060-8817

Volume

51

Article Issue

3

Related Issue

29898

Issue Date

2021-12-01

Receive Date

2021-11-04

Publish Date

2021-12-01

Page Start

114

Page End

120

Print ISSN

2357-0601

Online ISSN

2357-061X

Link

https://jhiphalexu.journals.ekb.eg/article_203212.html

Detail API

https://jhiphalexu.journals.ekb.eg/service?article_code=203212

Order

1

Type

Original Article

Type Code

511

Publication Type

Journal

Publication Title

Journal of High Institute of Public Health

Publication Link

https://jhiphalexu.journals.ekb.eg/

MainTitle

Breast Cancer Patients’ Experience about Involvement in Health Care: A Qualitative Study

Details

Type

Article

Created At

22 Jan 2023