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Health Related Quality of Life of Rheumatic Heart Disease Patients in Alexandria: An Intervention Approach

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Last updated: 03 Jan 2025

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Abstract

  Background: Rheumatic heart disease (RHD) is a chronic illness resulting from one or more attacks of acute rheumatic fever and characterized by permanent heart valve damage. RHD affects the health related quality of life (HRQOL) of patients. Objective: to describe the HRQOL of RHD cases in Alexandria. Methods: A retrospective descriptive study and an intervention (one group pretest post - test) approach were used to study RHD and its effect on the HRQOL of the patients registered at the RHD unit in the Main University Hospital and Heart Clinic of El-Shatby University Children's Hospital in Alexandria. Data were collected using a pre-designed structured interviewing questionnaire and the generic form of HRQOL questionnaire (SF-36). An intervention program was designed based on the results and perception was reassessed using the same study tools. Results: Regarding the mean scores of HRQOL subscales of RHD cases, scores related to physical components and general health were lower compared to the emotional and social ones. Studying the effect of the personal characteristics of the RHD cases on HRQOL, oneway MANOVA indicated a significant impact of age, diagnosis, complications, attacks, period between treatment and injection. The general perception score was 87.505 ±6.935 and 76.477 ±11.575 pre and post intervention with a highly significant difference. After intervention, RHD patients were about seven and half times more likely to have good level of perception compared to RHD cases before intervention. Conclusion: RHD cases of 30 years and above were found to be statistically associated with poorer HRQOL in all domains except the role limitations due to emotional problems. RHD with valve affection had significant influence on the worst HRQOL in social functioning only. RHD cases receiving treatments every month had a significant poorer HRQOL in all domains in comparison with other periods of treatment. The intervention program had a significant effect on the general perception score among RHD patients.      

DOI

10.21608/jhiph.2013.19997

Keywords

Acute rheumatic fever, HRQoL, RHD, SF-36 questionnaire

Authors

First Name

Dalia

Last Name

Monib

MiddleName

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Affiliation

Fellow of Epidemiology, High Institute of Public Health, Alexandria University, Egypt

Email

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City

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Orcid

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First Name

Iman

Last Name

Wahdan

MiddleName

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Affiliation

Department of Epidemiology, High Institute of Public Health, Alexandria University, Alexandria, Egypt

Email

imanwahdan@yahoo.com

City

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Orcid

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First Name

Ali

Last Name

Hasab

MiddleName

-

Affiliation

Department of Epidemiology, High Institute of Public Health, Alexandria University, Alexandria, Egypt

Email

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City

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Orcid

-

First Name

Salah

Last Name

Zaher

MiddleName

-

Affiliation

Department of Pediatrics, Faculty of Medicine, Alexandria University, Alexandria, Egypt

Email

-

City

-

Orcid

-

Volume

43

Article Issue

2

Related Issue

4039

Issue Date

2013-10-01

Receive Date

2018-11-29

Publish Date

2013-10-01

Page Start

112

Page End

120

Print ISSN

2357-0601

Online ISSN

2357-061X

Link

https://jhiphalexu.journals.ekb.eg/article_19997.html

Detail API

https://jhiphalexu.journals.ekb.eg/service?article_code=19997

Order

2

Type

Original Article

Type Code

511

Publication Type

Journal

Publication Title

Journal of High Institute of Public Health

Publication Link

https://jhiphalexu.journals.ekb.eg/

MainTitle

Health Related Quality of Life of Rheumatic Heart Disease Patients in Alexandria: An Intervention Approach

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Article

Created At

22 Jan 2023