Abstract
Background: Patient registry is“an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves a predetermined scientific, clinical, or policy purpose(s).
Aim of Study: To establish registry of Cerebral Palsy (CP) in Qalubia governorate.
Subjects and Methods: Children with CP who are receiving physical therapy services of both genders, ranged in age from 2 months to 18 years in govermental hospitals, Health insurance hospitals and private physical therapy centers which deal with children in Qalubia governorate. The number of cases which included in this study was 181 cases. The outcomes measures were Viking speech Scale, Manual Ability Classification System (MACS), Gross Motor Function Classification System (GMFCS) and Gross Motor Function Measure (GMFM).
Results: One hundred and eighty one cases were enrolled with a prevalence of 6 per 100.000 live births. The participants in the study, spastic CP was the most common type represent-ing, 84.60% of the total sample, while Hypotonic was 13.20%, Ataxic was 1.7% and Dyskinetik was 0.60%. Percentage of CP based on GMFCS were 1.20% for level I, 21.50% for level II, 12.70% for level III, 9.90% for level IV, and 54.70% for level V. GMFM was used to determine the score of performance for each participant. According to MACS and Viking speech scale high incidences of children with CP were classified at level IV.
Conclusion: The current study revealed that prevalence of CP in Qalubia governorate was 181 children representing 6 per 100.000 live births. The spastic type 84.60% was the most common while the ataxic type 1.7% is the least preva-lence. Demography revealed 51.9% of children wereboys and 48.1% were girls, high incidence of children with CP level V using GMFCS, and level IV using MACS and Viking speech scale.